Lina is NED
February 22nd, 2013
Yesterday was a great day for many reasons.
First we got great results from the scans and Little Miss Lina is considered in first remission :)markers has dropped for t ...
Blog by Team Lina
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February 22nd, 2013
Crazy week to come
February 17th, 2013
This coming week we will scan again, have a follow up appointment with the neurosurgeon and meet
with our oncologist.
I really don't know what to expect from the scan. Lina seems to be doing fine
most of the time but seems a bit more tired at times. If it weren't for her tumour markers
and her previous relapses that always followed the same patterns I would be way calmer.
But both Mike and I ...
with our oncologist.
I really don't know what to expect from the scan. Lina seems to be doing fine
most of the time but seems a bit more tired at times. If it weren't for her tumour markers
and her previous relapses that always followed the same patterns I would be way calmer.
But both Mike and I ...
Fly high little prince
February 9th, 2013
Today I am sad, today I am mad and today I feel at loss for words and I cannot stop the tears
as yet another beautiful and very brave little toddler earned his angel wings.
He fought so hard, he fought with a smile on his face, he hadsome close calls
and yet he was supposed to be fine. But he wasn't. The cancer was hiding in his body giving
everyone hope that the battle was won but it came ba ...
as yet another beautiful and very brave little toddler earned his angel wings.
He fought so hard, he fought with a smile on his face, he hadsome close calls
and yet he was supposed to be fine. But he wasn't. The cancer was hiding in his body giving
everyone hope that the battle was won but it came ba ...
January 2013- a Summary
February 7th, 2013
Poor Lina seems to have come down with a beginning ear infection. She was crying and telling me her ear hurts. So far she does not have a fever and the ibuprofen seems to be taking care of the pain. I took her to the doctor and she confirmed the ear infection. Lina is now on antibiotics for the next 7 days. I hope these antibiotics won't cause too much havoc with her digestion.
...
...
Two Years- 732 days
December 9th, 2012
Two Years - 732 days
Two years ago today Lina was diagnosed with stage 2 intermediate risk neuroblastoma.
Two years ago our life changed forever. Lina has been in treatment for 732 days.
So is it a day to celebrate or is it a day to be upset? It definitely is an emotional day.
It has been quite the journey so far with many ups and many downs, many smiles and many tears - most of them shed o ...
Two years ago today Lina was diagnosed with stage 2 intermediate risk neuroblastoma.
Two years ago our life changed forever. Lina has been in treatment for 732 days.
So is it a day to celebrate or is it a day to be upset? It definitely is an emotional day.
It has been quite the journey so far with many ups and many downs, many smiles and many tears - most of them shed o ...
Great news :) stable or even a bit smaller
November 10th, 2012
Lina was dancing and singing in the neurosurgery waiting room showing everyone that this surgery has not slowed her down one bit. The results from the MRI are really good. The tumour has not grown and it might even be a a tiny bit smaller (but most likely just the same). There is still a lot of fluid build up in the spinal column and around the spine from
the surgery and quite a few areas of ...
MRI and too many kids we know relapse
November 10th, 2012
Thank you everyone for all the kind words! Lina did great at her MRI and since she is a frequent flyer everyone knows her and she enjoys the fame :) We won't know the results for a while as we will be discussing them with the neurosurgeon.
Lina requested to visit the oncology clinic after her scan and everyone was amazed by her running around wild with Frieda right after the anesthetics. I al ...
Lina requested to visit the oncology clinic after her scan and everyone was amazed by her running around wild with Frieda right after the anesthetics. I al ...
Happy Birthday Lina
October 20th, 2012
Happy Birthday Lina
Today is going to be an emotional day for many reasons.
Two years ago I met you for the first time, you chose to come a day early
even though we were told the day before that you would most likely follow in your big sisters footsteps and be late (quite a bit). You decided to pick a very special date (20.10.2010) and the only night that I had not slept at all. All I could ...
Today is going to be an emotional day for many reasons.
Two years ago I met you for the first time, you chose to come a day early
even though we were told the day before that you would most likely follow in your big sisters footsteps and be late (quite a bit). You decided to pick a very special date (20.10.2010) and the only night that I had not slept at all. All I could ...
Scans = scanxiety =being normal"
September 30th, 2012
Next week is scan week. Lina will have three days of scans Tuesday, Wednesday and Thursday in addition to blood work and tumour markers. I am already getting pretty nervous even though we just scanned 3 weeks ago. After talking to other nb parents they all told me that they are nervous every single time they have a scan even when their kid has been in remission for years. So I guess in my new ...